Thursday, December 24, 2015

Awareness is crucial!!

I've had several people ask me how we found out I had breast cancer. It's a rather whirlwind story but I think it's soooo important that all my girlfriends are aware of how quickly things happen so here goes,
WARNING: if you would rather not hear about my boobs (or current lack thereof) stop reading now!..
Due to family history of breast cancer, some aunts and a sister....my Dr suggested I look into genetic testing. We weighed the pros and cons for awhile before finally deciding, for the sake of my daughters, we needed to go ahead and do it. So at the end of October I went in for genetic testing. I was told it would take approximately 4 weeks for results. About 3 weeks after going in for testing I noticed a 'weirdness' in my right breast. I really wouldn't even have considered it a lump...it felt more like knotted up muscle/tissue. I gave myself bruises trying to determine if it actually was anything to worry about. I didn't do monthly self exams..always had good intentions just never got around to it. But I was kind of pushing my palm against my breast because it was achy (like they would get every month for a couple days) and that's when I felt it. To be honest, I sort of forgot about it and didn't think too much of it anymore. Then about a week later I got a call from the gentesist. She said my results were in and I needed to schedule an appointment to come in and discuss the results. I told her we were leaving town for a week and asked if we could just go over the results on the phone. She said,'no. It's nothing to panic about, nothing critical but it definitely warrants more than a phone conversation. We'll just set up an appointment for after the holidays are over" And for some reason, right before I was about to hang up I asked her...'I don't know if this is relevant or not but would it mean anything to you if I said I feel something different in my breast?' She got very quiet and then proceeded to tell me that I tested positive for BRCA2. Which is a genetic mutation that puts me at high risk for early onset breast and ovarian cancer. That very night she had me in contact with a breast surgeon (this all happened between 5-7pm) he scheduled me the next day for a mammogram and an ultrasound. During the ultrasound they had a Dr come in and look at the pictures and he scheduled me for a biopsy the next morning. By that point the final diagnosis of 'invasive ductal carcinoma' was not a surprise. This all happened right around thanksgiving. 2 1/2 weeks later I had a bilateral mastectomy which showed 2 tumors in the right breast and cancer in 2 of the lymphnodes. I am preparing for chemotherapy treatments and possibly radiation.
I had a mammogram in 2014. It was clear. If I would not have gone in for the genetic testing I probably would have ignored my instincts that something felt off...and probably would have waited several months before having another mammogram. After all, I'm not even 40. Getting one every couple of years should be plenty right?
Don't put off those check ups and trust your gut! If something seems off...advocate for yourself and get it checked out!!


19 comments
Comments
Katrina Maljaars Thanks for sharing Julaine! I am 40 and I keep putting off the appointment to get a mamogram, but now I see how important it is. Thankful that your results were pretty good. Probably wouldn't have been if you had not been on top of it and gotten tested! Praying for you as you go through your treatments in the next few months!
Mina Oostlander Thanks for sharing , Julaine. 
Kristen Mason Luther Thank you for your ability to educate us all on your journey. I myself have never had mine checked so once I get past my current journey I'll get in to do mine. So glad you were able to get the help you needed so fast and the doctors were so proactive with you. You have Angels looking over you and are in good hands.
Kelli Huffaker Christoferson Thank you for sharing!!
Briann Den Hoed Thanks for sharing! So glad you didn't wait til after the holidays!!
Dee Voetberg Van Beek thanks for sharing. Think of you often --- but didn't you turn 40 in October - the day before Trent was 41??? Or are you 2 years behind him?? Maybe you should check with your mother!!!! Have a great and Blessed Christmas!!
Cedar Johnson So important to hear and keep sharing these stories. Makes it much more relatable and kick us in the keister to get a mammogram or at least do monthly checks - thanks so much for sharing Julaine!!!!!
Lisa DeBruin DeKoster Thanks for sharing Julaine... I'm in the same boat with my mom and g-ma;s history...need to get in myself
Sunny Dawsey Wright Can I share this? Its so important!!!! 
Julaine Hoefakker Groeneveld No problem!! It is very important and yet....we're all guilty of procrastinating when it comes to taking care of ourselves. Breast cancer is so treatable. It's all about early detection!
Julaine Hoefakker Groeneveld
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Lois Sperling Lyon You are doing a service to many by sharing your story. smile emoticon
Tonya Smith Steinbock Thank you for being so amazing and such an inspiration to all of your friends!!! I appreciate you speaking candidly about your experience. 
Debbie Wiersma Maddox Way to get the word out Julaine!!
Alvina Noordmans Great advice but so sad you have to go through this! You are a trooper and have an awesome faith! Praying for strength throughout tx and complete healing and speedy recovery!
Vicki Wentz You're story will change lives . Thank you for sharing. Continued prayers for an amazing woman.
Audra Hoefer Distifeno Thank you for sharing , Julaine...I had no idea that any of his was going on and wouldn't have guessed because you looked great when I saw you at the game the other day. I'm so glad all is going well and am praying that chemo and/or radiation are short-lived and you're given a clean bill of health soon. Hugs to you! 💕
Diana Heffron Prayers For you 
Sandra Beierle Desserault Thank you for sharing! Hope you had a wonderful day celebrating Jesus and family! Merry Christmas!
Kortnie Castillo Thank you for sharing! Early detection is sooo important! Your girls have a wonderful, strong and smart mom! Your not only fighting this battle for yourself but for them too when you made the choice to be tested! 
Laura Eisenga Thank you for sharing! And praying for you as you continue on this journey!