Wednesday, January 13, 2016

Port Installation

I was more than ready to get the port put in since my veins are becoming so uncooperative. Its a simple outpatient procedure, they knock you out for about an hour...you recover for a couple hours and then get to go home. I assumed it would be a walk in the park. It really wasn't so bad that first day. But the next day....I kind of got hit by a reality check. I'm sorry but there's really no other way to say it than that port hurt like a SOB! 
I was so happy to have full function back on my left side and was feeling quite proud of myself for being -according to the PT- ahead of schedule. Well guess where the port went it? yep...left side. And my body doesn't want it in there. Apparently though this will only last for a couple of days and while it may always be somewhat uncomfortable it will supposedly quit stabbing me every time I swallow or talk or move. Ok....enough whining and complaining! It will be well worth it to save the veins in my arms and hands and stop feeling like a pin cushion!
A port is a small plastic device that they implanted right below the collar bone.  From what I can tell it measures about 1 1/2 inches. Out of the plastic device is a tube that feeds directly into the jugular vein in my neck. The plastic device has a magnetic center in it that needles will automatically connect with when blood draws or injections are needed. So in the long run...it will be a very good thing! But for today....it sucks:/


While they were in there they re cleaned and re packed the right incision. It does seem to be making progress and we will go back in next week so he can check that out again. Onward and upward!
One more thing crossed off the list:)


Julaine Hoefakker Groeneveld
January 11 at 6:22pm
Well, life has just been continuing to march on along! Loved having Ashley home for 3 weeks, she headed back to school yesterday:) Bob was home for 3 weeks as well which was  very strange but really nice! We spent a rare Christmas at home instead of traveling over the mountains, and while we definitely missed being with our families we still had a pretty wonderful Christmas!   I ended up with a staph infection in one of my insicions which hasn't really been a barrel of laughs, and that has delayed forward progress some but we do seem to be getting on top of that now.
 I had surgery this morning to have a port installed, my veins seem to have started to rebel a little these past couple weeks so I'm kind of excited to have the port in so we can stop the hide and seek game with my veins:) if the infection continues to clear up well, the goal is to be able to start chemo by the 29th of January. The first 2 months we will be doing chemo every other week, after that we will be doing weekly chemo treatments for 12 additional weeks. When that's all done we'll tackle 33 doses of radiation. So while that may seem daunting when you lay it all out there, we're really trying to remember that this is not all that our world is, its just PART of our life right now...and our 'normal' life still continues. The kids still have 4h and ffa and basketball games and fairs, there's still work to do and errands to run and friends to enjoy! While it's doubtful that I may be able to return to work anytime real soon, Ill try to focus on getting some more of my own schooling done on my good days and just lay low on the bad days. Through it all we continue to be overwhelmed and incredibly grateful for God's amazing blessings! Everyone should have the opportunity at some point in thier lives to experience the incredible amount of love and support that our family has been blessed with over this past month! It is truly life altering! 
Xoxox

Marilyn Maljaars All the best to you Julaine.
Audrey Hoefakker Grisnich love you wink emoticon
Marilyn Beekman Van Oort You are sure a trooper, Julaine!
Joleen Timmer Julaine, praying that the Lord will be with you as you continue on this journey. May He give you strength for the days and hours of treatment.
Christine Hurn Underwood God bless you & your family! Always in my thoughts & prayers!
Katrina Maljaars Praying you are given the strength for this long road. Thanks for keeping us updated!
Karen Don Continuing prayers for you!
Steve Thonney Any livestock help needed I can help.
Clarinda Herfst Your updates make a lot of negatives sound positive. Keep that positive attitude throughout the next few months. All that love and support will carry you through the bad days. God bless 
Rachael Hoefakker Love you auntie julaine  continuing to pray for you!
Te'a Trump Prayers! You are amazing taking this journey in such graceful stride! heart emoticon
Kevin Slingerland Continuing to pray for you Julaine. Thanks for keeping us all posted.
Holly Alefteras Prayers to you!
Tonya Smith Steinbock Love love love not only you and your family, but your positivity is incredible! 
Wendy Larson Rodriguez You are such an inspiration! Continued prayers for healing and strength!
Jill Scott Hugs to you! You are a rock star! wink emoticon
Malissa Garcia Praying for a speedy recovery!!!!
Best Nunez Lornna Bless your heart.. Continued prayers!
Marlene Kooyman Hugs to you my friend  praying the infection clears up soon!
Diana Heffron Blessings For all of you!
Kelly Harrington 🏻. My friend!!!
Lori Suhadolnik Riggs Julaine, you are an inspiration to all of us! Miss you alot! (((Hugs)))
Angela Hester Knight You're such a blessing.
Tonya Marquez You amaze me. I love your attitude. Stay strong.. 
Kristal Cole You have such a positive spirit - it's inspiring! I will miss you at school when I get back! 
Kim Hull Kilian Prayers and HUGS!!!
Lois Sperling Lyon When you start treatments, I am available to be a driver. God bless you and your family. Love you,
Amy Courtney Love you beautiful lady!!! 🏼
Kelli Parsons Schutt You are an amazing reminder of what a positive attitude will do! Love and hugs!
Connie Dotson Hachtel You are a wonderful person with such strong determination! We live in a great community - it is humbling sometimes to think what people will do for you! Keep up the battle - heart emoticon
Deanna Niemeyer Flores Many good thoughts coming your way:)
Mercedes Munoz Pedroza Praying for you and family. Please let us know if we can help in anyway. Kimberly can definitely help with driving Brandi to basketball practice.
Lolli Harris Essary Love this..not the list of crap you have to endure but the completely positive attitude you have sprinkled with a little bit of humor and sass! 
Sandra Beierle Desserault Thank you for the update! You've been in my daily Prayers, I admire your Faith and strong will. Continued Prayers to You and your family. 💕
Connie Channel Thinking of you often and continuing to pray for your healing! GodBless!😇
Cami Bohlmann Fitzgerald You amaze me Julaine; I admire your positive attitude. Continue sending hugs and prayers to you and your family!!! 💕
Kim Dunkin Praying for you Julaine 
Kathy Weber Keep the positive outlook. We will miss you at work, and continued prayers for you.
Michele Smith You, Julaine, are by far, the most amazing, positive, uplifting, beautiful, strong & courageous woman I know. I pray for you and your family quite often. Your words are just incredible. You are an awesome mom & wife.
Julie Trull Schilperoort You got this, Julaine!
Kristen Mason Luther We will continue to pray for you as your journey continues. May you be blessed with more love and support. Hugs.
Evangelina Galvan Shreeve Prayers for days full of love and laughter- your strength is what will endure you and your family
Rene Lee Satterfield Martinez Sending a big hug from Sofia and prayers from all of us!!! Xoxoxox
Laura Eisenga Praying for lots of energy to get through these days and peace about what lies ahead! heart emoticon
Sandy Cueto Kisses, hugs and mucho strength sent your way sweet J....
Alvina Noordmans Good to hear from you. May God give you strength and healing!


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